A new hope for Ed Port
38 year old Ed Port from Ohio received some good news this week concerning the miracle he desires. Ed was born with a rare genetic condition called neurofibromatosis which causes large tumours to grow on his face. Ed’s condition is the same as the so called Chinese Elephant Man Huang Chuncai’s disfigurement although fortunately for [...]
32 year old Huang Chuncai from China’s southern Hunan province is preparing for a third operation to remove the enormous tumour growing on the left side of his face. Huang gained the nickname Elephant Man when the neurofibromatosis he suffers from caused huge tumours to grow on his face, severely disfiguring him. Not only are [...]
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A scientist in Melbourne, Australia thinks he may have found a treatment which will suppress neurofibromatosis, the disease which causes tumours to grow on people’s nerve endings almost anywhere on their bodies. James O’Neal, Ed Port and Tonderai Mandigumura all suffer from the condition and are desperate for a cure. Huang Chuncai, who is known [...]
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James O’Neal from Redmond, Washington suffers from the rare genetic condition neurofibromatosis which leaves him horribly disfigured. O’Neal, who compares himself to the legendary Elephant Man doesn’t let his condition hold him back. He has worked for a leading American supermarket chain, and become a popular member of staff with customers and colleagues. Now one [...]
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